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Monday, December 15, 2014

weekend update

It's Monday again and I am still on my couch.  I can honestly tell you that I hate this couch also.  Jim brought me Pedialite on Fri.  The label says to stay hydrated drink 1 liter a day. I am tired of drinking all day!  I spread Sunday's bottle out because it was the last one I had.  So I am just finishing it now. 

Saturday I felt good. I needed to pick up a prescription and I wanted some things at the grocery store so I talked Rylee into driving me around.  We got to the pharmacy only to find that my prescription for nausea meds can't be refilled because my insurance says I can only have 75 pills in 75 days.  it's been 6-7 weeks and I take maybe 2 a day, sometimes 3.  So now I have none.  Crap.  Saltines and 7-Up it is I guess.  After that we went to the store.  I should have known better after the pharmacy that it wouldn't go well.  We made it to isle 3 and my bag leaked down my leg.  Poor Ry had to finish the shopping while I made a dash for the bathroom and changed the bag in a public restroom.  I don't know how people have normal lives. 

Most of Sunday I felt good too.  Today I am a little woozy again and I needed a nap.  Part of that might attest to the fact that my bag leaked in bed last night and I was in the shower at 1 am.  Now today I am washing bedding, my favorite thing to do.  I sleep with these little squishy pillows all tucked under me and the one the bag leaked on happened to be red so everything is stained pink from the dye. Grrr.  Thankfully it didn't get on the quilt Jim's mom made for our bed. 

I took myself to the clinic near our house for blood work again today.  It is super icy and super windy out.  I did not enjoy the drive.  I am waiting on a call to see if the Pedialite is enough or if I have to go in for IV fluids.  I am so close to the end, I just hate the thought of dragging my self across town to do that.  I will if I have to, of course. 

Jim wanted me to call Patient Services and see how things were coming.  He thinks we might get put on the back burner and forgotten.  I don't think that will happen.  I am to tired to do it so I had him do it.  I would only ask the wrong questions anyway.  I know money is getting tight and he is hoping for some answers so he can plan ahead because that is what he does.  He is good at planning and I am very grateful for that.  It's hard when you know that it's getting tight and you can't help.  I hate not being able to contribute and leaving it all to him.  It doesn't seem fair.  Especially when you figure I have been to work for 5 weeks out of the last 14.  He has been holding us together for a while now.  I couldn't do this without him.

I have to tell you about Sunday.  I have a group of friends that I love.  We dubbed ourselves the Monkees and there are 5 of us.  Myself, Michelle, Kate, Carly and Jen.  Michelle moved away and we don't see her as often as we would like.  The last weekend we all had planned together I was in the hospital for.  Big sad face!  Anyway, my girls all got together and made Rylee her favorite -lasagna, and garlic bread, chex mix, and cookies, cookies, cookies!!!  And Michelle's boyfriend, Dave, made Jim some wild rice soup!!  My family was very, very happy!  Sadly, Jen works retail and tis the season for her to have little to no time off so she was missed.  They brought it all over on Sunday morning.  I couldn't be more thankful for them. I love them all so much. 

I am going to close on that positive note.  Enjoy your holidays and make sure that you tell EVERYONE that you love them.  You never know if you will get another chance.

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